In 2016, Sanofi and Regeneron conducted a survey of 1,000 Rheumatoid Arthritis patients in the US, with hopes of getting a better understanding of patient needs. The survey, titled Honestly RA, resulted in data that can help others understand what those of us with RA are feeling. While I'm typically skeptical of pharma backed initiatives like … Continue reading Honestly Rheumatoid Arthritis
Does anyone else with Rheumatoid Arthritis (RA) have trouble sleeping? The crazy thing is, it's not the pain that keeps me up at night. At least I don't think it is the pain, or perhaps I'm partially immune to the pain after 12 years of living with RA. Could it be side effects from my … Continue reading Help, I have Rheumatoid Arthritis and I CAN’T SLEEP!!!
I was fortunate enough to meet some fellow RA warriors over the weekend. We shared stories of pain, suffering, laughter, courage, fear, hope, loneliness, depression, fitness goals, clean eating tips and most important of all, quality time spent with people who have so much in common with each other. As the weekend progressed, I jotted … Continue reading What is #ArthritisStreetCred?
I just realized it had been almost a year since I've sat down to write a post. A year? Seriously? Where does time go? Since my last post, I moved to Austin, Texas. It's almost as weird to type right now as it is to recite my new address over the phone to the mail-in pharmacy. … Continue reading Lots of Changes, but I still have RA
Just Arthritis - NOT.
It's no secret that catching major Z's can be virtually impossible when you have RA (Rheumatoid Arthritis), especially when your disease is flaring. Whatever the reason for not being able to sleep; pain, stress, anger, all of the above; sleep is so important for your overall health. In fact, insomnia can further damage an already … Continue reading Rheumatoid Arthritis and Fatigue
http://www.youtube.com/watch?v=CSMtEtfxPbY This is a pretty inspirational video on a young Australian woman diagnosed with Rheumatoid Arthritis. Not only does it prove that arthritis doesn't discriminate as she was young, fit and active when her symptoms began, but it also shows how a positive outlook and quick action can help make this chronic disease more tolerable.
Thanks for this educational blog from Warm Socks about ERA.
Enthesitis Related Arthritis is a form of arthritis that begins in people under 16 years of age. Although it is more commonly diagnosed in boys, girls can also have ERA. Onset is usually between the ages of 9-12.
ERA is also sometimes simply called enthesitis. If a child has been diagnosed with enthesitis by a pediatric rheumatologist and requires long-term follow-up, verify with the doctor that the full name of the disease is ERA aka enthesitis-related juvenile idiopathic arthritis. Not only is enthesitis one of the forms of JIA, but it is also part of a group of diseases called spondyloarthropathies.
This type of arthritis is significantly different from osteoarthritis, which is the type of arthritis typically seen in older people and athletes. In osteoarthritis (OA), the cartilage cushion at the joint between two bones wears away. Bone-on-bone is extremely painful. With OA, tylenol…
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Too often, I get lost in my everyday routine... work, friends, family; LIFE so much so that I simply forget to write or writing just keeps moving to the bottom of my priority list. This is especially true when my RA is under control. But lately, my RA has been again flaring and so thoughtfully … Continue reading What keeps me writing?… YOU do
Innovations Consulting Group is holding a FREE series of workshops for patients with Rheumatoid Arthritis this Tuesday, 7/17 at the Cornell Club at 6 East 44th Street from 6-8PM. RSVP online at: http://www.innovationsgroup.org/events